In less than a month my little sister turns seventeen, we haven’t really been getting along well lately, this past year has been one of the worst years in regards to us. We used to be best friends. But now, she has my brother’s girlfriend. There’s quite an age difference between us, but that’s besides the point.

I think I’ve finally figured out what I’m going to get her for her birthday, which is a huge accomplishment, I’m trying not to stress too much about it right now. She is a huge fan of Ronda Rousey and I found some pretty extraordinary shops of Etsy that sell some awesome handmade, unique merchandise all pertaining to her great hero. Including one that sells religious-style candles but instead of Jesus or Mary with the open heart thing happening, Ronda Rousey is there, in all her extreme saint-like bad-ass glory. So I’m thinking that that will be the perfect present for her–it’s awesome, kinda funny, and right up her alley.


In other news, this summer has been crazy and I’ve barely been able to post anything. Of course, that’s partially because I wanted a break from sharing things online. I find that every once and awhile a break is needed.

But things have been both good and bad, I’ve been happy some moments and sad the next. The depression has come back full force which is unfortunate. And health-wise, I’ve been deteriorating, right now as I type I have a neck brace on. This neck brace has been on more than it hasn’t for the past week. And the pain isn’t getting much better.

I’ve also come to the unfortunate realization that despite the fact I thought I was dealing and accepting my new diagnosis, I wasn’t. For the past year, I’ve been ignoring it. Trying to live in this pseudo-reality I created independent from real life. Getting farther away from myself. Distracting myself. And the truth is, I don’t even know how to begin to accept this.


I get angry a lot lately and though it’s completely normal-I despise it. I have Ehlers Danlos Syndrome and because Doctors missed it for 22 years–dismissing me, ignoring me, blaming it on Madelung’s Deformity (which I also have). Despite the warning signs, no one seen it. But that isn’t even why I’m so mad and completely-emotionally destroyed. It’s because I don’t want to have this. As much as I try to make sense of it, sometimes no logic can be applied to it. Everyday is a struggle. Some days the world gets darker but despite that, I will never give up and I will find a way to live with these new diagnoses. EDS and POTS. As one of a good friend of mine says; I may have EDS but EDS doesn’t have me.


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s