Writer. Tea drinker. Reader. Coffee drinker. Photographer. Occasional baker with an obsession with nature.
On a journey to truly live my life. Which is hard to do when you have a invisible illness. I believe in living authentically. Living out loud. Living compassionately. I believe that anyone can make it through a few pages of their story all they have to do is keep going–keep turning those pages and before they know it, you’ll find yourself somewhere better. I volunteer with the ILC Foundation which is a foundation that works with children, youth and their families who deal with chronic pain diseases on a daily basis. I am a feminist (of course), and social activist (as much so as I can be), I work as a freelancer.
I have Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Madelungs Deformity, Raynauds Syndrome, and have been misdiagnosed so many times I’ve lost track. But despite that, those diseases don’t have me.
And after years of never believing I’d be able to, I’m planning on starting University next fall. It is something I’m equally nervous and excited about.
Please enjoy my various posts and stay awhile.
Love. Be kind. Live. Be compassionate. Be you.